A to Z of useful neurological websites
Below is a list of other organisations and websites which may be useful. Conditions are listed alphabetically. The Brain and Spine Foundation is not responsible for the content of the following links, if there is an organisation which you would like added please email details to the Helpline team who will review content and suitability of the site before it is added.
Choose category:
- Acoustic Neuroma
- ADEM (Acute Disseminated Encephalomyelitis)
- Alzheimer’s Disease
- Aphasia
- Arnold Chiari Malformation (ACM)
- Arteriovenous Malformation
- Ataxia
- Back pain
- Brain injury
- Brain tumour
- Cerebral palsy
- Charcot-Marie-Tooth Disease
- Chemotherapy
- Children
- Chronic Fatigue Syndrome
- Creutzfeldt-Jacob Disease (CJD)
- Dementia
- Devic's Disease
- Dizziness
- Dysphasia
- Dystrophy
- Encephalitis
- Epilepsy
- Eyes
- Face pain
- Gamma Knife
- Generally useful websites
- Genetics
- Guillain-Barre
- Headache
- Head injury
- Hemiplegia
- Huntington's disease
- Hydrocephalus
- Idiopathic Intracranial Hypertension
- Kyphosis
- Labyrinthitis
- Meniere's Disease
- Meningioma
- Meningitis
- Mental Health
- Migraine
- Mini stroke
- Motor Neurone Disease
- Multiple Sclerosis
- Muscular Dystrophy
- Myalgic Encephalomyelitis (ME)
- Myasthenia Gravis
- Narcolepsy
- Neck pain
- Neurofibromatosis
- Neuropathy
- Osteoporosis
- Pain
- Paralysis
- Parkinson's disease
- Persistent Vegetative State
- Pituitary disorders/tumours
- Polio
- Progressive Supranuclear Palsy (PSP)
- Radiosurgery
- Radiotherapy
- Raynaud’s Syndrome
- Scoliosis
- Speech problems
- Spina bifida
- Spinal injury
- Spinal Muscular Atrophy
- Spinal surgery
- Spinal tumours
- Stroke
- Sub-arachnoid Haemorrhage
- Syringomyelia
- Transient Ischaemic Attack (TIA)
- Transverse myelitis
- Trigeminal neuralgia
- Vascular malformations
- Vertigo
- Wilson’s Disease
Brain injury
- Child Brain Injury Trust (CBIT)
- Headway - The Brain Injury Association
- Rehab UK
- Sudden Trauma Information Service Helpline
Brain tumour
- Brain Tumour Action
- Brain Tumour UK
- CancerBacup
- CancerHelp UK
- Macmillan Cancer Relief – Cancerline
- Marie Curie Cancer Care
- United Brain Tumour Campaign
- Samantha Dickinson Brain Tumour Trust
Dystrophy
-
Duchenne Family Support Group
Helpline: 0870 241 1857 -
Muscular Dystrophy Campaign
Helpline: 020 7720 8055
Epilepsy
-
Epilepsy Action
Helpline: 0808 800 5050 -
Epilepsy Scotland
Helpline: 0808 800 2200 -
National Society for Epilepsy
Helpline: 01494 601400
Eyes
-
Moorfields Eye Hospital
Helpline: 0207 566 2345 -
Royal National Institute for the Blind (RNIB)
Helpline: 0845 766 9999
Generally useful websites
- European Dana Alliance for the Brain
- Database of Individual Patient Experiences (DIPEx)
- NHS Expert Patients Programme
- Patients Association
- Department of Health
- Patient UK
- Crossroads – caring for carers
- Neurological Alliance
- NHS Direct
- Best Treatments
- National Institute of Neurological Disorders and Stroke
- Brain and Spinal Injuries Charity (BASIC)
- Drake Music Project
- DiseaseCondition.com
- Regional Driving Assessment Centre
Headache
-
OUCH UK (Cluster headache support group)
Tel: 0161 272 1702 -
The Migraine Trust
Tel: 020 7436 1336 -
The Migraine Action Association
Tel: 01536 461333 - Headache Expert
Hemiplegia
-
www.hemihelp.org.uk
Hemihelp is a UK based charity for children and young people with hemiplegia and their families.
Meningitis
-
Meningitis Research Foundation
Helpline: 0808 800 3344 -
Meningitis Trust
Helpline: 0845 6000 800
Multiple Sclerosis
-
Multiple Sclerosis Society
Helpline 0808 800 8000 -
Multiple Sclerosis Trust
Helpline: 0146 247 6700
Pain
- Pain Concern
- The British Pain Society
- Pain Clinic.org
-
Action on Pain
Painline: 0845 6031593 (Local rate)
Radiosurgery
- London Radiosurgical Centre
- National Centre for Stereotactic Radiosurgery, Sheffield
- The Cromwell Hospital Gamma Knife Centre
Sub-arachnoid Haemorrhage
- Wessex & Salford Hospitals
- Brain Help
- The Brain Aneurysm Foundation (USA)
- Brain aneurysm resources (USA)
Transient Ischaemic Attack (TIA)
-
The Stroke Association
Helpline 0845 303 3100 - Different Strokes
- Circulation Foundation
